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Research Study

Two important surveys to tell policymakers what’s important to Autistic people and carers.


ACCESS-EU and 10 Points for Change

Please read the below information regarding research that you may wish to participate in.

The University of Cambridge, as part of AIMS-2-TRIALS, are running two surveys :

The first survey is to explore the experiences of Autistic people and their carers accessing services such as health, mental health, social care, education, employment and therapy; as well as comparing service availability and quality across Europe and beyond.

What is involved?
The survey will take about 20 minutes. You may stop at any time but the researchers are unable to remove data already submitted.

Who can participate?
A) Autistic people 16 years or older
B) Family carers (16 years or older) of Autistic people of any age

Those who are self-diagnosed or waiting for diagnosis are welcomed, and these results will be analysed separately. If you are Autistic and a carer of an Autistic person, you can complete once for yourself and once for your family member.

The second survey is to help identify priorities for policy improvement across Europe.

What is involved?
The survey will take about 10 minutes. You may stop at any time, but the researchers are unable to remove data already submitted. You will be asked non-identifiable questions about yourself then about topics you think your government should be prioritising. Topics were chosen from focus groups with autistic people and carers across Europe.

Who can participate?
A) Autistic people aged 16 or over
B) Family carers of Autistic people who can’t complete the survey themselves
C) People working in the field of Autism

To participate in the above surveys please click on https://www.aims-2-trials.eu/wp-content/uploads/autismstudieslinks.pdf

For more information on the study please contact autismpolicyresearch@medschl.cam.ac.uk