Irish Society for Autism
The Irish Society for Autism has been at the forefront of residential services for adults with Autism for over 30 years. We are a parent driven organisation, a not for profit society, who provided services where none existed. Our priority is and always has been the people in the service, their families and the staff.
The Irish Society for Autism has been experiencing some difficulty in achieving regulation with HIQA. These have been very challenging times for all concerned including our residents and staff, many of whom have been with us for a long time. The Irish Society for Autism welcomes the improvements in legislation and the introduction of standards in services for adults with Autism. Hopefully these standards will ensure a better quality of life for all people with disabilities in residential services.
We have entered in an agreement with the HSE to ensure the continuation of services for our residents. We are a small organisation and we believe that, in the long term, this decision is in the best interest of our residents.
We are very grateful to all for their commitment and perseverance during this difficult period.
9 September 2015
The European Parliament passes a written declaration on autism
The adoption of the written declaration on autism, drafted in cooperation with Autism-Europe, was officially announced this week by the President of the European Parliament, Martin Schulz, during the opening of the plenary session in Strasbourg. 418 Members of the European Parliament (MEPs) signed the Written Declaration, which calls on the European Union and its Member States to adopt a European strategy for autism.
MEP Nicola Caputo, first signatory of the written declaration, stressed the need to improve support for those affected by autism in the EU. “Despite the importance of early diagnosis to provide adequate support and education, early detection is still lacking across Europe. This is why I call upon the Commission and the Council to support accurate and early detection and diagnosis of children and adults with autism. Moreover we urgently need a European strategy which should aim at encouraging research on autism, prevalence studies and exchange of best practices regarding evidence-based interventions for children with autism, as well as habilitation services for adults”, MEP Caputo said.
OPINIONS OF PARENTS WITH CHILDREN WITH NEURODEVELOPMENTAL AND GENETIC DISORDERS
Please read below information regarding research survey which you may wish to participate in –
Niamh McDevitt is a researcher with Trinity College Dublin’s Autism and Neurodevelopmental Disorders research group. She is currently running a study that focuses on the opinions of parents with children with neurodevelopmental and genetic disorders. The hope for this research is that parents and researchers can work towards more focused and beneficial goals for these children.
If you wish to participate in this research study please follow the link below: https://www.surveymonkey.com/s/W5JKLDH