Irish Society for Autism
9 September 2015
The European Parliament passes a written declaration on autism
The adoption of the written declaration on autism, drafted in cooperation with Autism-Europe, was officially announced this week by the President of the European Parliament, Martin Schulz, during the opening of the plenary session in Strasbourg. 418 Members of the European Parliament (MEPs) signed the Written Declaration, which calls on the European Union and its Member States to adopt a European strategy for autism.
MEP Nicola Caputo, first signatory of the written declaration, stressed the need to improve support for those affected by autism in the EU. “Despite the importance of early diagnosis to provide adequate support and education, early detection is still lacking across Europe. This is why I call upon the Commission and the Council to support accurate and early detection and diagnosis of children and adults with autism. Moreover we urgently need a European strategy which should aim at encouraging research on autism, prevalence studies and exchange of best practices regarding evidence-based interventions for children with autism, as well as habilitation services for adults”, MEP Caputo said.
OPINIONS OF PARENTS WITH CHILDREN WITH NEURODEVELOPMENTAL AND GENETIC DISORDERS
Please read below information regarding research survey which you may wish to participate in –
Niamh McDevitt is a researcher with Trinity College Dublin’s Autism and Neurodevelopmental Disorders research group. She is currently running a study that focuses on the opinions of parents with children with neurodevelopmental and genetic disorders. The hope for this research is that parents and researchers can work towards more focused and beneficial goals for these children.
If you wish to participate in this research study please follow the link below: https://www.surveymonkey.com/s/W5JKLDH
THE IMPACT OF PARENTAL WELL-BEING ON THE QUALITY OF LIFE OF CHILDREN AND ADULTS WITH AUTISM
Please read below information regarding research that parents may wish to participate in –
Brian Whyte as part of his Masters Degree in Applied Psychology in University College Cork is conducting a research study to examine the impact of parental well-being on the quality of life of children and young adults with autism. It is hoped that by understanding this impact, it will be possible to feed into the development of new interventions aimed at improving the quality of life of children and young adults with autism.
He is looking for parents of children or teenagers with Autism between the ages of 2 to 18 years to complete a short survey. If you wish to participate in this research please follow this link http://goo.gl/forms/DKlzagH2KD